{"id":1871,"date":"2023-05-12T00:00:00","date_gmt":"2023-05-12T06:00:00","guid":{"rendered":"https:\/\/ahflatamycaribe.org\/people-with-hiv-have-their-own-voice\/"},"modified":"2024-02-06T17:11:53","modified_gmt":"2024-02-06T23:11:53","slug":"people-with-hiv-have-their-own-voice","status":"publish","type":"post","link":"https:\/\/ahflatamycaribe.org\/en\/people-with-hiv-have-their-own-voice\/","title":{"rendered":"People with HIV have their own voice"},"content":{"rendered":"\n<p class=\"wp-block-paragraph\">Cuando un problema de salud tiene tan <strong>grandes dimensiones<\/strong>, como es el caso de VIH, se podr\u00eda llegar a olvidar que su impacto es m\u00e1s que n\u00fameros, y que toca <strong>de maneras\u00a0 diferentes<\/strong> personas de todo el mundo.<\/p>\n\n<p class=\"wp-block-paragraph\">Es por esto que desde el inicio de la respuesta al VIH, emprendida hace 40 a\u00f1os por <strong>organizaciones civiles<\/strong> antes que por las autoridades de salud, se hizo \u00e9nfasis en la necesidad de atender a los grupos afectados poniendo atenci\u00f3n en <strong>sus caracter\u00edsticas<\/strong>, sus vulnerabilidades y sus necesidades.<\/p>\n\n<h2 class=\"wp-block-heading\"><strong>Perspectivas Positivas: Voces en 3,500 Personas con VIH<\/strong><\/h2>\n\n<p class=\"wp-block-paragraph\">Son pocos los estudios internacionales y extensos que se han dado a la tarea de <strong>preguntar las opiniones <\/strong>de las personas que viven con VIH. Este fue el objetivo que se propuso una reciente investigaci\u00f3n realizada por ViiV Healthcare, una <strong>alianza farmac\u00e9utica<\/strong> entre Pfizer y MSD, dedicada al desarrollo de medicamentos contra el VIH.<\/p>\n\n<p class=\"wp-block-paragraph\">La encuesta <a href=\"https:\/\/viivhealthcare.com\/content\/dam\/cf-viiv\/viivhealthcare\/en_GB\/files\/22_09_20_PP2_Global_Results_Report_FINAL_(September_2020).pdf\" target=\"_blank\" rel=\"noopener\" title=\"\"><em>Positive Perspective<\/em><\/a> (llamada en espa\u00f1ol <em>Perspectivas positivas<\/em>), se llev\u00f3 a cabo en dos etapas que consultaron en total a <strong>3 mil 500 personas<\/strong> con VIH de m\u00e1s de 20 pa\u00edses, entre ellos cuatro latinoamericanos (Argentina, Brasil, China y M\u00e9xico).<\/p>\n\n<p class=\"wp-block-paragraph\">El documento, dicen los autores, revela <strong>las experiencias<\/strong> de quienes viven con VIH y refleja los cambios que han surgido en la atenci\u00f3n de la infecci\u00f3n, adem\u00e1s de que aporta datos sobre distintos aspectos de la <strong>calidad de vida que<\/strong> deben ser tomados en cuenta dentro de la atenci\u00f3n m\u00e9dica.<\/p>\n\n<h2 class=\"wp-block-heading\"><strong>Polifarmacia: Un Reto para la Calidad de Vida<\/strong><\/h2>\n\n<p class=\"wp-block-paragraph\">La encuesta indag\u00f3 sobre la polifarmacia, que se define como la situaci\u00f3n en la que una persona toma tratamiento para <strong>cinco o m\u00e1s enfermedades<\/strong> o condiciones de salud. Se revel\u00f3 que <strong>42%<\/strong> de los encuestados se encuentra en dicha situaci\u00f3n. Adem\u00e1s, <strong>82%<\/strong> afirm\u00f3 que toma al menos <strong>un medicamento diario<\/strong> no relacionado con el VIH.<\/p>\n\n<p class=\"wp-block-paragraph\">Gracias a la eficacia de los tratamientos antirretrovirales, <strong>cada vez m\u00e1s<\/strong> personas con VIH alcanzan sin problemas la tercera edad, lo cual conlleva la presencia de otras condiciones de salud relacionadas con <strong>el envejecimiento<\/strong>, como las enfermedades cardiacas o metab\u00f3licas. Sobre este tema, <strong>57%<\/strong> de los participantes dijo sentir preocupaci\u00f3n por tener que tomar m\u00e1s y m\u00e1s medicamentos <strong>conforme se hagan mayores<\/strong>.<\/p>\n\n<p class=\"wp-block-paragraph\">Considerando que, hasta la fecha, el tratamiento antirretroviral debe tomarse durante toda la vida, el <strong>73%<\/strong> de los encuestados desear\u00edan tener una opci\u00f3n de tratamiento <strong>con menos medicamentos<\/strong>. El estudio tambi\u00e9n encontr\u00f3 que la polifarmacia es un factor que afecta negativamente la calidad de vida que reportan las personas con VIH.<\/p>\n\n<h2 class=\"wp-block-heading\"><strong>Di\u00e1logo M\u00e9dico-Paciente: Un Factor Clave <\/strong><\/h2>\n\n<p class=\"wp-block-paragraph\">En cuanto a la capacidad de di\u00e1logo entre m\u00e9dicos y usuarios, la encuesta encontr\u00f3 que aquellas personas con VIH que <strong>estaban<\/strong> <strong>m\u00e1s involucradas<\/strong> en su atenci\u00f3n ten\u00edan mejores resultados de salud. En el mismo sentido, el 65% de los participantes dijo que <strong>le gustar\u00eda estar m\u00e1s involucrado<\/strong> en las decisiones sobre su tratamiento.<\/p>\n\n<figure class=\"wp-block-pullquote\"><blockquote><p>Sin embargo, un obst\u00e1culo para involucrarse es la <strong>mala comunicaci\u00f3n<\/strong> que tienen con el personal de salud, ya que <strong>77%<\/strong> indic\u00f3 que no se siente c\u00f3modo al discutir con los profesionales de la salud <strong>los temas importantes<\/strong> relacionados con su infecci\u00f3n.<\/p><\/blockquote><\/figure>\n\n<p class=\"wp-block-paragraph\">Estos temas importantes son: las preocupaciones sobre los <strong>efectos secundarios<\/strong> del tratamiento antirretroviral y el impacto que estos f\u00e1rmacos podr\u00edan tener <strong>a largo plazo<\/strong>. Lamentablemente, <strong>un tercio<\/strong> de los participantes declar\u00f3 sentirse inc\u00f3modo al hablar con su equipo m\u00e9dico sobre ambos temas.<\/p>\n\n<p class=\"wp-block-paragraph\">Adem\u00e1s, la falta de comunicaci\u00f3n se reflej\u00f3 en que <strong>34%<\/strong> de la poblaci\u00f3n encuestada dijo que sus m\u00e9dicos <strong>no le informaron<\/strong> que mantener una carga viral indetectable (una cantidad de virus menor a 200 copias\/ml de sangre) <strong>evita la transmisi\u00f3n del virus<\/strong> a las parejas sexuales. Dentro de este grupo, los hombres heterosexuales fueron quienes <strong>menos recibieron<\/strong> esta informaci\u00f3n durante su atenci\u00f3n.<\/p>\n\n<h2 class=\"wp-block-heading\"><strong>Comunicaci\u00f3n Abierta: Empoderando a Personas con VIH<\/strong><\/h2>\n\n<p class=\"wp-block-paragraph\">Para enfrentar los problemas de comunicaci\u00f3n, la encuesta sugiere que las personas con VIH se acerquen a <strong>grupos de apoyo mutuo<\/strong> o a organizaciones de la sociedad civil que les ayuden a construir su confianza para hablar <strong>m\u00e1s abiertamente<\/strong> con los profesionales de la salud, con el fin de manejar de una mejor manera los tratamientos.<\/p>\n\n<p class=\"wp-block-paragraph\">As\u00ed que ya lo sabes, es momento de comenzar a cambiar esa <strong>relaci\u00f3n de jerarqu\u00eda<\/strong> que suele existir entre el personal m\u00e9dico y los usuarios de los servicios. Busca abrir el di\u00e1logo con tu equipo m\u00e9dico; <strong>preguntar tus dudas<\/strong> y expresar tus opiniones no tiene por qu\u00e9 ser considerado como algo \u201cimprudente\u201d o \u201catrevido\u201d. Despu\u00e9s de todo, se trata de tu salud.<\/p>\n\n<p class=\"wp-block-paragraph\">Y recuerda que comenzar cuanto antes el tratamiento antirretroviral y mantenerlo <strong>es la clave<\/strong> para vivir bien con el VIH. Si todav\u00eda no lo inicias o si lo suspendiste y quieres retomarlo, en <strong>AHF Am\u00e9rica Latina y el Caribe<\/strong> podemos ayudarte. Localiza <a href=\"https:\/\/ahflatamycaribe.org\/servicios-en-latinoamerica\/\" target=\"_blank\" rel=\"noopener\" title=\"\">nuestras oficinas en tu pa\u00eds<\/a> o escr\u00edbenos por Whatsapp y conoce todos nuestros servicios.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Cuando un problema de salud tiene tan grandes dimensiones, como es el caso de VIH, se podr\u00eda llegar a olvidar que su impacto es m\u00e1s que n\u00fameros, y que toca de maneras\u00a0 diferentes personas de todo el mundo. Es por esto que desde el inicio de la respuesta al VIH, emprendida hace 40 a\u00f1os por [&hellip;]<\/p>\n","protected":false},"author":5,"featured_media":786,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[50],"tags":[],"class_list":["post-1871","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-living-well-with-hiv-en"],"aioseo_notices":[],"aioseo_head":"\n\t\t<!-- All in One SEO Pro 4.9.10 - aioseo.com -->\n\t<meta name=\"description\" content=\"When a health problem has such large dimensions, as is the case of HIV, one could forget that its impact is more than numbers\" \/>\n\t<meta name=\"robots\" content=\"max-image-preview:large\" \/>\n\t<meta name=\"author\" content=\"Mara Ruiz\"\/>\n\t<link rel=\"canonical\" href=\"https:\/\/ahflatamycaribe.org\/en\/people-with-hiv-have-their-own-voice\/\" \/>\n\t<meta name=\"generator\" content=\"All in One SEO 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